What holds you together?

I think everyone, no matter who they are or what they are dealing with in life has meltdowns occasionally.  It doesn't matter how wonderful your life is, you are bound to have one over something at some point, right? I mean, we are all human afterall.  But what pulls you from your meltdowns?  What keeps your feet on the ground? For me, its the kids.

I was having a freak out earlier this morning. One of those days where I just wanted to mope around in my stained tshirt and EXTREMELY unattractive pj pants.  I was even contemplating if brushing my hair was really that important.  In between making everyone's bed and giving the kids breakfast before Luke had to go school I stood in the kitchen for a minute and was having a mental break down.  How the hell can I keep going?  Luke has school, sports and a social life.   Everley is an insane toddler who is always into something.  Connor, is Connor.  We have good days and bad.  I have school and work... I have a family to take care of.  A Chiari Awareness walk to plan that is rapidly approaching.  I can't do it.  I need to quit everything.  I don't want to do it anymore. I want to go back to bed and hide.  It was seriously a minute of panic, and then in comes Connor....with a clown nose.  In his sweet little Swedish accent he said "Here mam, put dees on!"  I did.  Boom, snap back to the real world.   Isn't it funny how some things are just genetic.  I look at Connor and all I see is my husband.  They look so much alike.  They even have the same seriouness and stubborn personalities... but the goofiness.. that is just rooted deep in them.  You can't pick and choose what traits are passed down...  but I'm glad they have my ability to make a joke out of everything.  Kids are great for so many reasons, but I truly love their honesty and how much they truly care and the interesting way they show their feelings.  Even if it's something as simple as putting a clow nose on mommy to cheer her up. 

"The most interesting information comes from children, for they tell all they know and then stop."

 

Conquer Chiari Walk Across America

From the beginning of receiving Connor's diagnosis I was desperate to find information.  What was the most amazing source? The Conquer Chiari Foundation.   Every year for the past six years they have done an awareness walk.  This year I am organzing one for our area, Emerald Isle, NC.   To say it has been a challenge is putting it lightly. It is so hard to get sponors and donations. It's so hard to plan where you will have it.  It's hard to get people to register to participate in the walk.  But it's worth it.  I'm sure it's only hard because it's my first year and next year will be much better.  A lot of it is the fear of the unknown, but I have been lucky to get a lot of amazing advice from other organizers.  I'm pretty excited about it. Every place I speak to is another place that has now heard of Chiari.  Even if they don't want to participate, they have now heard the word.  Victory in it's own.

If you are interested in walking with us, please register below! We would love to have you!



To register to walk or donate for the Emerald Isle, NC walk:
http://www.conquerchiari.org/ccwaa/ccwaa-main.html

Walk Facebook page:
https://www.facebook.com/groups/476936415703267/